It's hard to review this book. It was well written, it was interesting. I suppose I'd recommend it. But I found it disturbing and depressing. It's about the author's profoundly retarded and disabled son, his rare genetic disease, and other children like him. Walker, Brown's son, was born with cardiofaciocutaneous (CFC) syndrome, an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he's mentally and developmentally between one and three years old and will need constant care for the rest of his life.
( Read more... )
( Read more... )